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The Boy Whose Skin Fell Off

2004-03-25 | Documentary
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A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

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Ratings

8.7
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-

People's review rating

Positive 67%
Negative 33%
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2,741 Movie prompts Related to The Boy Whose Skin Fell Off

Maimovie AI learns movie taste from social media, search keywords, and other diverse crowd data. As a result, our AI has characterized this movie with the following movie tastes:

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Cast

Acting & Cast

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profile image of Johnny Kennedy
Johnny Kennedy Himself

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Based on the crowd’s live-updated social data, the following movie tastes represent the featured crew of the movie, The Boy Whose Skin Fell Off:

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profile image of Patrick Collerton
Patrick Collerton Director

Visual & Sound Taste from Video

Jonny Kennedy is a man with a lot to do. He’s got just four months to move home, meet Nell McAndrew, fly a plane, visit ...

Jonny Kennedy is a man with a lot to do. He’s got just four months to move home, meet Nell McAndrew, fly a plane, visit ...

Real Stories
this is a reccomend and a clip for a documentary i watched on youtube. its called Jonny Kennedy the boy whose skin fell off.

this is a reccomend and a clip for a documentary i watched on youtube. its called Jonny Kennedy the boy whose skin fell off.

pinkies vlogs
To donate in Jonathan's memory, go to: http://debracanada.org/product/A5CDEAD/memorialdonationdoncommmoratif.php To ...

To donate in Jonathan's memory, go to: http://debracanada.org/product/A5CDEAD/memorialdonationdoncommmoratif.php To ...

Ottawa Citizen
Nicky has a rare condition nicknamed butterfly skin, which causes his skin to fall off. Subscribe to TLC UK for more great clips: ...

Nicky has a rare condition nicknamed butterfly skin, which causes his skin to fall off. Subscribe to TLC UK for more great clips: ...

tlc uk
A year ago, 36-year-old Jonny Kennedy passed away. He had a terrible genetic condition called Dystrophic Epidermolysis ...

A year ago, 36-year-old Jonny Kennedy passed away. He had a terrible genetic condition called Dystrophic Epidermolysis ...

Reel Truth Documentaries
JONNY KENNEDY ~ A True Hero Of Life http://www.jonnykennedynortheast.org.uk/

JONNY KENNEDY ~ A True Hero Of Life http://www.jonnykennedynortheast.org.uk/

Barry D. Graham
GINGERDUNDEESCO reviews the boy whose skin fell off- please buy this dvd from a retailer it is a very inspiring real story.

GINGERDUNDEESCO reviews the boy whose skin fell off- please buy this dvd from a retailer it is a very inspiring real story.

NEIL MALONE
Dean's Parents were told not to expect their Son to live past 5. Dean is now 37 and living with EB. Deans story is brave and ...

Dean's Parents were told not to expect their Son to live past 5. Dean is now 37 and living with EB. Deans story is brave and ...

In The Open
Butterfly Boy's Skin Falls Off With The Slightest Touch Subscribe: http://bit.ly/Oc61Hj MOST teenage boys love to run around and ...

Butterfly Boy's Skin Falls Off With The Slightest Touch Subscribe: http://bit.ly/Oc61Hj MOST teenage boys love to run around and ...

Barcroft TV
SUBSCRIBE to the Barcroft network: http://bit.ly/Oc61Hj FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ...

SUBSCRIBE to the Barcroft network: http://bit.ly/Oc61Hj FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ...

Barcroft TV
Ottawa teenager Jonathan Pitre died on Wednesday, April 5 after complications from a rare skin condition called epidermolysis ...

Ottawa teenager Jonathan Pitre died on Wednesday, April 5 after complications from a rare skin condition called epidermolysis ...

CBC News: The National
Exclusive : How Rich is DONALD TRUMP MULTI MILLIONARE , DRUGS, LUXURY LIFE . DOCS: The Boy Whose Skin Fell Off ...

Exclusive : How Rich is DONALD TRUMP MULTI MILLIONARE , DRUGS, LUXURY LIFE . DOCS: The Boy Whose Skin Fell Off ...

Pedro Conway
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj Despite being born with an incredibly rare condition that causes his skin to ...

SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj Despite being born with an incredibly rare condition that causes his skin to ...

Barcroft TV
The Boy Whose Skin Fell Off by Myles O'Reilly.

The Boy Whose Skin Fell Off by Myles O'Reilly.

lauriehester
ORPHANBEATS.ORG Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis ...

ORPHANBEATS.ORG Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis ...

Chris McDonald
This is a short documentary that aired in October 2011 about my amazing wife, Sam. A brave young woman with a fascination for ...

This is a short documentary that aired in October 2011 about my amazing wife, Sam. A brave young woman with a fascination for ...

Bart Smith
Despite his devastating condition, 17-year-old John makes the most of every day. Subscribe: ...

Despite his devastating condition, 17-year-old John makes the most of every day. Subscribe: ...

Channel 5
I wrote this song a couple of years ago after watching "The Boy Whose Skin Fell Off" which documented the final months of Jonny ...

I wrote this song a couple of years ago after watching "The Boy Whose Skin Fell Off" which documented the final months of Jonny ...

Eleanor Gardner
The Killers at Glastonbury 2019. Listen to the playlist now - https://UMC.lnk.to/KillersGlastonburyID The Man - The Killers Written ...

The Killers at Glastonbury 2019. Listen to the playlist now - https://UMC.lnk.to/KillersGlastonburyID The Man - The Killers Written ...

TheKillersMusic
Nick Cannon gets caught off guard when Mariah Carey drops by at the wrong time! #MariahCarey #LetMeHolla #WildNOut ...

Nick Cannon gets caught off guard when Mariah Carey drops by at the wrong time! #MariahCarey #LetMeHolla #WildNOut ...

Wild 'N Out
Jonny Kennedy is a man with a lot to do. He’s got just four months to move home, meet Nell McAndrew, fly a plane, visit ...

Jonny Kennedy is a man with a lot to do. He’s got just four months to move home, meet Nell McAndrew, fly a plane, visit ...

Real Stories
this is a reccomend and a clip for a documentary i watched on youtube. its called Jonny Kennedy the boy whose skin fell off.

this is a reccomend and a clip for a documentary i watched on youtube. its called Jonny Kennedy the boy whose skin fell off.

pinkies vlogs
To donate in Jonathan's memory, go to: http://debracanada.org/product/A5CDEAD/memorialdonationdoncommmoratif.php To ...

To donate in Jonathan's memory, go to: http://debracanada.org/product/A5CDEAD/memorialdonationdoncommmoratif.php To ...

Ottawa Citizen
Nicky has a rare condition nicknamed butterfly skin, which causes his skin to fall off. Subscribe to TLC UK for more great clips: ...

Nicky has a rare condition nicknamed butterfly skin, which causes his skin to fall off. Subscribe to TLC UK for more great clips: ...

tlc uk
A year ago, 36-year-old Jonny Kennedy passed away. He had a terrible genetic condition called Dystrophic Epidermolysis ...

A year ago, 36-year-old Jonny Kennedy passed away. He had a terrible genetic condition called Dystrophic Epidermolysis ...

Reel Truth Documentaries
JONNY KENNEDY ~ A True Hero Of Life http://www.jonnykennedynortheast.org.uk/

JONNY KENNEDY ~ A True Hero Of Life http://www.jonnykennedynortheast.org.uk/

Barry D. Graham
GINGERDUNDEESCO reviews the boy whose skin fell off- please buy this dvd from a retailer it is a very inspiring real story.

GINGERDUNDEESCO reviews the boy whose skin fell off- please buy this dvd from a retailer it is a very inspiring real story.

NEIL MALONE
Dean's Parents were told not to expect their Son to live past 5. Dean is now 37 and living with EB. Deans story is brave and ...

Dean's Parents were told not to expect their Son to live past 5. Dean is now 37 and living with EB. Deans story is brave and ...

In The Open
Butterfly Boy's Skin Falls Off With The Slightest Touch Subscribe: http://bit.ly/Oc61Hj MOST teenage boys love to run around and ...

Butterfly Boy's Skin Falls Off With The Slightest Touch Subscribe: http://bit.ly/Oc61Hj MOST teenage boys love to run around and ...

Barcroft TV
SUBSCRIBE to the Barcroft network: http://bit.ly/Oc61Hj FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ...

SUBSCRIBE to the Barcroft network: http://bit.ly/Oc61Hj FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ...

Barcroft TV
Ottawa teenager Jonathan Pitre died on Wednesday, April 5 after complications from a rare skin condition called epidermolysis ...

Ottawa teenager Jonathan Pitre died on Wednesday, April 5 after complications from a rare skin condition called epidermolysis ...

CBC News: The National
Exclusive : How Rich is DONALD TRUMP MULTI MILLIONARE , DRUGS, LUXURY LIFE . DOCS: The Boy Whose Skin Fell Off ...

Exclusive : How Rich is DONALD TRUMP MULTI MILLIONARE , DRUGS, LUXURY LIFE . DOCS: The Boy Whose Skin Fell Off ...

Pedro Conway
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj Despite being born with an incredibly rare condition that causes his skin to ...

SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj Despite being born with an incredibly rare condition that causes his skin to ...

Barcroft TV
The Boy Whose Skin Fell Off by Myles O'Reilly.

The Boy Whose Skin Fell Off by Myles O'Reilly.

lauriehester
ORPHANBEATS.ORG Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis ...

ORPHANBEATS.ORG Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis ...

Chris McDonald
This is a short documentary that aired in October 2011 about my amazing wife, Sam. A brave young woman with a fascination for ...

This is a short documentary that aired in October 2011 about my amazing wife, Sam. A brave young woman with a fascination for ...

Bart Smith
Despite his devastating condition, 17-year-old John makes the most of every day. Subscribe: ...

Despite his devastating condition, 17-year-old John makes the most of every day. Subscribe: ...

Channel 5
I wrote this song a couple of years ago after watching "The Boy Whose Skin Fell Off" which documented the final months of Jonny ...

I wrote this song a couple of years ago after watching "The Boy Whose Skin Fell Off" which documented the final months of Jonny ...

Eleanor Gardner
The Killers at Glastonbury 2019. Listen to the playlist now - https://UMC.lnk.to/KillersGlastonburyID The Man - The Killers Written ...

The Killers at Glastonbury 2019. Listen to the playlist now - https://UMC.lnk.to/KillersGlastonburyID The Man - The Killers Written ...

TheKillersMusic
Nick Cannon gets caught off guard when Mariah Carey drops by at the wrong time! #MariahCarey #LetMeHolla #WildNOut ...

Nick Cannon gets caught off guard when Mariah Carey drops by at the wrong time! #MariahCarey #LetMeHolla #WildNOut ...

Wild 'N Out

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The Boy Whose Skin Fell Off FAQ

On April 15, 2024, the IMDB rating of The Boy Whose Skin Fell Off is 8.7/10, Rotten Tomato rating is 0/100, Metacritic rating is 0/100, TMDB rating is 8.0/10.
The genre of The Boy Whose Skin Fell Off is Documentary.
On April 15, 2024, there were 2741 public reaction to The Boy Whose Skin Fell Off including remarkable, undemanding mood, desperately hoping, nearly unbearable, smart-ass.
The casts of The Boy Whose Skin Fell Off are Johnny Kennedy starring as Himself.
The release date of The Boy Whose Skin Fell Off is March 25, 2004.
The runtime of The Boy Whose Skin Fell Off is 50 minutes.
The director of The Boy Whose Skin Fell Off is Patrick Collerton.